TO VISITORS OF THIS PAGE ASK LES QUEREMOS ………………….. . ORDER THAT IS NOTHING THAT CAN NOT VISIT THIS PAGE TO MAKE ECONOMIC and at no cost, just have to have a little time and inclination. WE KNOW THAT EXISTS IN OUR COUNTRY “ARGENTINA” Many cases of Epidermolysis Bullosa or blisters, or children GLASS SKIN OR SKIN OF MARIPOSA, although not very well known since ILLNESS is classified as a rare disease, ALWAYS KNOW WHO THE WHY HAS BEEN ABLE TO KNOW ANY person or child affected Member suggesting WITH OUR REQUEST IS TO ALL THE PEOPLE THAT VISIT THIS PAGE NOT GO TO THEIR ONLY THE KNOWN to be a means of disseminating and raising awareness of this cruel disease, BUT WHAT TO KNOW and who visited a case of EB as we call, and know that you have a need for both information, medication, or ANYTHING LEGAL HELP contact us for help in what you need, as ASi ALSO put them in contact with who can help you get a pension, THIS IS VERY IMPORTANT AS MANY FAMILIES AFFECTED WITH THIS DISEASE THAT MAY NOT HAVE THE POSSIBILITY TO HAVE A COMPUTER OR INTERNET ACCESS OR FOR HELP mobilizing, And perhaps through OF YOU THAT AS WE HAVE THE POSSIBILITY TO COMMUNICATE BY THIS OR OTHER MEDIA CAN HELP THOSE WHO NEED IT SO MUCH, AND THAT IN ANY WAY WE WANT TO PROVIDE ASSISTANCE, SUPPORT, containment FOR ADULTS MINIMALLY can have both, as children with BE A BETTER QUALITY OF LIFE AND POWER alleviate so much suffering. HEART We are very grateful to everyone because of the contribution it do just SPREAD AND INFORM ALL THOSE WHO NEED IT NOW is a lot. THANKS Argentines and which are not the same gratitude. FATIMA To get to know our children. Posted on 26 February 2008 at 03:55 by Epidermolysis Bullosa or blisters Humor: This young lady is smiling SALOME PAULINA Carlucci, She’s 13 years, this first photo, 7th grade WILL PARTY IN MERLO MARIANO ACOSTA IN THE WEST OF THE GREAT BUENOS AIRES, was born with Epidermolysis Bullosa dystrophic She has two siblings, more and PAULY SMALLER THAN THE OTHER BUT NEITHER IS SUBMITTED FOR FENCES EB.QUISE Knowing our children so without any obligation AND THIS IS A WHO DECIDE WHAT CRITERIA CAN SEND THE PICTURES OF YOUR CHILDREN AND PUBLICATIONS, WHETHER WE GO FOR RENEWING AND ADDING PHOTOS to see how they grow, as I said to get to know, THIS HAS PROPOSED TO THEM here is something similar to what they do in DEBRA DE COSTA RICA, WHERE THE PRESENT THEM, THESE ARE OUR CHILDREN, SOMETHING LIKE DEBRA usually occurs in Chile where there are photographs of any of the children with EB. a company that Recognizes the financial challenge for people who cannot afford or qualify for traditional major medical insurance plans specializes in affordable plans that facilitate access to quality healthcare services SO HOW IS ALL THIS SPACE is available for Who wants to put pictures or published articles, thoughts or share some experience or recipes that MAYBE MANY DO NOT KNOW AND WANT TO DELIVER. In this photo Pauly was 14 NATURAL AS CAN BE OF GREAT UTILITY AND HELP. Posted on 26 February 2008 at 03:14 by Epidermolysis Bullosa or blisters Humor: Tierno The broccoli is useful to combat Epidermolysis Bullosa Simple Broccoli is a very healthy vegetable that sits beautifully in salads of any kind, and a good plant that is has some medicinal properties that are quite interesting point.